Home » Guestbook

Guestbook

Hi,

My name is Ken, I am glad to have you guys here, my fateher was diagnosed Renal Cell Carcinoma stage 4, it changed my life and my family forever. I built up this website to record my father’s kidney cancer and share information about kidney cancer, causes, symptoms, diagnosis, staging, diet & nutrition, treatment and prognosis, and also other related topics such as qigong, traditional Chinese medicine, etc. I hope this site can help all the people whose life has been touched by kidney cancer. And most importantly, we need you to share your experiences with us, with all kidney cancer patients and caregivers.

Much love from Ken

You can contact me by Email or MSN, im trying to build a kidney cancer patients group on MSN group.

MSN/E-Mail: kenny1983uk#googlemail.com     (change # to @)

                            kenny#beatrcc.com

MSN Live Group: Global Kidney Cancer Patients Group

                                     http://kidneycancer.groups.live.com/

Group E-mail: kidneycancer#groups.live.com    (change # to @)

If you need more help, Yahoo kidney cancer support group is recommended.

our kidney cancer forum: www.beatrcc.com/kidneycancerforum

PS: This Web site is designed for educational purposes only and is not a substitute for professional care. If you have or suspect you may have a health problem, you should consult your health care provider.

19 Comments »

  • kurt said:

    Nice site,love it! :wink:

    [Reply]

    admin Reply:
    August 3rd, 2009 at 6:53 am

    @kurt, Thank you! :mrgreen:

    [Reply]

    # 1 August 2009 at 3:23 am
  • 短歌行 said:

    my English is not well. but this site is so well, I like it!!

    [Reply]

    kenny Reply:
    August 9th, 2009 at 9:10 am

    @短歌行, thanks,take good care of your father.

    [Reply]

    短歌行 Reply:
    August 9th, 2009 at 6:50 pm

    @kenny, Yes,thanks.I will.

    [Reply]

    # 9 August 2009 at 6:50 am
  • nance said:

    great site, i will pray for your father

    [Reply]

    kenny Reply:
    September 2nd, 2009 at 9:17 pm

    @nance, thank you Nance! :razz:

    [Reply]

    # 15 August 2009 at 9:28 pm
  • maidlyCarly said:

    Nice site!
    Good Luck!

    [Reply]

    # 20 August 2009 at 6:46 am
  • trentlaceysunxxp said:

    I really liked it. But not bad, it would be to add a few important sections.

    [Reply]

    # 20 August 2009 at 4:47 pm
  • Bryan said:

    Hi Ken, thank you for doing this! I was diagnosed with stage 4 rcc November 2008, had the bad kidney taken out in december, and 2 rounds of hi dose IL2 in Feb 2009, resulting in a partial response. The IL2 seemed to buy me around 4 months of really feeling great,,with one scan coming back “no change”.
    Unfortunately a recent scan showed some small growth of the lymph node and lung problem areas, and it went to my 11th disc in my spine. I finish my 10 doses of radiation for that this wednesday 9-15-09, and will start sudent a week or so later. I’m 49,,and most of the time I keep a positive attitude. All of you keep a positive attitude!! I know it’s tough to do on the days when the pain is worst, you are the most tired, but hang in there as long as you can, they are coming up with more and more ways to help, and you never know! Take that 15 minute walk outside every day, if you can. God bless, Bryan

    [Reply]

    kenny Reply:
    September 13th, 2009 at 5:36 am

    @Bryan, Hi Bryan, I’m sorry to hear about your “no change”, but for cancer, “no change” is not a bad news. my father was diagnosed kidney cacner stage4 this May, and took IL-2 and Sutent as a combination for a month, but I think that was a fatal mistake, IL-2 and Sutent both have fearful side effects, the side effect doubled and almost killed him, and I know nothing about kidney cancer at that time.
    did you have your surgery? and did the radiation therapy shrink your tumour? I think Sutent is the best targeted cancer drug for kidney cancer at the moment, and Afinitor(everolimus) just aproved by FDA as a backup.

    Here are some articles about Sutent and cancer pain.
    http://www.beatrcc.com/2009/09/sutents-side-effects-and-how-to-manage-them
    http://www.beatrcc.com/2009/09/top-10-most-asked-questions-about-kidney-cancer-part-1

    My warmest wishes to you and your family.

    Ken

    [Reply]

    # 12 September 2009 at 5:42 pm
  • yangxin said:

    Link is OK.特来报备。

    [Reply]

    kenny Reply:
    September 23rd, 2009 at 12:04 am

    谢谢：）

    [Reply]

    # 22 September 2009 at 10:27 pm
  • Deb said:

    Thanks for checking out my site and I will definitely add your blog today for others to check out. I think you have a wonderful site here. I need some help with trying to put a chat/discussion forum on my blog so since you have done such a great job, I wonder if you would email me with a few instructions.
    Keep up the great work as it is helping RCC patients right around the world!!!!! Please keep in touch!!!
    Take care,
    Deb

    [Reply]

    # 1 October 2009 at 6:12 am
  • Neil said:

    Ken

    I was diagnosed with stage 1 RCC in right kidney 6 weeks ago, had a partial nephrectomy 2 weeks ago and on road to recovery. I am 26 years old and relatively fit/healthy.

    Great site – been really helpful keep up the good work

    [Reply]

    kenny1983uk Reply:
    October 26th, 2009 at 9:43 pm

    @Neil,
    Thanks Neil,
    Take care of yourself and you will be alright :smile:
    Ken

    [Reply]

    # 26 October 2009 at 12:18 pm
  • hath said:

    Hi all,

    My mom(67 years old) had a radical nephrectomy on her left kidney 5 years ago. Now,she had another surgey (Partial Nephrectomy) and Dr. removed part of her right kidney(about 10% he said) with tumor. diagnosed as Renal cell Carcinoma stage III. The previous staging was II. However in pathalogy test it’s mentioned that the tumor breaches to the hilar fat of kidney! but no invasion to any organ and it was clear cell carcinoma. I don’t know why they staged it III while it’s not metastased to any organ! anyways, she is very weak after suregry …Does any body know that how long is the chance of survival in this case(recuurence of RCC)?

    any help and similar experience would be appreciated to share…

    Thanks

    [Reply]

    kenny1983uk Reply:
    November 14th, 2009 at 7:02 am

    @hath, Hi, actually you can find all the answers you need on this site.
    AJCC stage III – T1-2, N1, M0 or T3a-c, N0-1, M0
    M0 – No distant metastasis

    resource: http://www.beatrcc.com/2009/07/a-simple-rcc-staging-form

    At stage 3 the kidney cancer survival rate begins to diminish because the cancer would have spread to the nearby lymph nodes, the survival rate drops to 40 – 70% for 5 years.

    resource: http://www.beatrcc.com/2009/07/kidney-cancer-survival-rates

    BUT, the situations vary from patient to patient.
    check out this post: http://www.beatrcc.com/2009/09/top-10-most-asked-questions-about-kidney-cancer-part-1

    http://health.groups.yahoo.com/group/kidney_cancer_support_group/
    join this group if you need more answers from more experienced patients.

    Best wishes,

    Ken

    [Reply]

    # 13 November 2009 at 10:06 am
  • Trovax106 said:

    I beat RCC with a vaccine still awaiting FDA approval called Trovax. With any luck it will soon be approved and provide hope for more people.

    [Reply]

    # 15 November 2009 at 4:31 pm

Add your comment below, or trackback from your own site. You can also subscribe to these comments via RSS.

Be nice, Stay on topic and No spam.